June 20, 2008

I have a right to know my genes

DNA coinMy Genes, not a Doctor's: I blog at ethical perspectives on the news about the California crackdown on private genetic testing. Overall, concerns of autonomy and integrity seem to trump any of the consumer concerns the government is claiming. My guess this is more about helping gatekeepers and vested interests than helping consumers.

I somewhat expect the same thing to happen in the EU too: here we have even more entrenched stakeholders as well as medical systems unwilling to take on the Internet patients. But it is not going to work in the long run, since personal sequencing is becoming cheap in a near future. At that point there will be no need to run a DNA chip, just a perl script downloaded from WikiGenome.

Posted by Anders3 at June 20, 2008 09:16 PM